Our hero, Nauê, is in the hospital in critical condition – Sapo and Lorena need our support now, more than ever, so they can focus on caring and advocating for him!

Nauê has a rare genetic condition called IFAP syndrome. One of the biggest risks to children with IFAP is skin infection, and bacteria entering their blood system. This is what Nauê is fighting right now. 

Because IFAP is so rare, doctors struggle to understand the complexity of his symptoms. IFAP’s complications make feeding, hydrating, going to the bathroom, administering IVs, and providing pain relief extremely difficult. Nauê has been a soldier, fighting bravely through terrible discomfort. 

As you can imagine, it takes all of Sapo and Lorena’s strength and energy to stay present and positive as they navigate this difficult and dangerous time for their family. Their hope is that Nauê improves enough so they can care for him at home where he feels safe and connected. They have been at the hospital 24/7 for over two weeks now. Neither of them have the benefit of paid leave from their work during this crisis – we are calling on the community and anyone who has seen their story to help them. 

Your contributions will cover Sapo and Lorena’s lost income while in hospital, help pay for bills and living expenses, and create a medical care fund for Nauê’s discharge and private skin care specialists.

Go Fund Me Campaign: https://www.gofundme.com/f/help-sapo-lorena-care-for-naue